Pepsi is giving 1p36 deletion syndrome another chance to win a $50,000 grant. I have posted these 3 videos so you can see some of the children and young adults that you will be helping. Please go to http://www.refresheverything.com/search/?q=1p36 and vote. Vote everyday. The first video is my son.
We have struggled Josh's entire life to find the proper help for him. We have lived in 4 different states. Every move has been for Josh. Recently Josh and I moved to North Carolina. Once we got here I quickly discovered that the resources that were here during my search were no longer available due to budget cuts. Josh has been denied to programs based on his disability. The doctors, therapists, and teachers don't know what 1p36 deletion syndrome is, so they don't know what to do for him. My suggestion is to educate yourself so when these children come into your programs you can help them.
I will say it has not all been bad. We lived in South Florida, and Pediatric Therapy Associates in Plantation, FL was an extraordinary therapy center. They went above and beyond the call of duty. Josh also attended a non profit school in Coral Springs, FL called Abi's Place. We were fortunate that year to receive a full scholarship for him. While attending Abi's Place I saw so many wonderful changes in Josh. The staff at the school made the parents feel like family. It was a great experience. You may wonder why we moved? Well, I simply couldn't afford to live in South Florida. As a single mom I didn't know how I would pay the bills. Josh lost his scholarship due to lack of funding. I chose NC because I believed that everything we needed was here, and the cost of living is lower here.
Joshua has seen 6 different physical therapists here. One therapist dropped him on his head. He had to get a CAT scan. One decided to wrap a rope around his torso, and pulled him off the ground with the rope causing injury. And 3 simply did not want to work with him. He is starting with the 6th therapist tomorrow. I am praying that she will work out. His school has segregated their special needs students. While at the open house I discovered that they were teaching my son at the same level as his 8 and 9 year old peers. This is like teaching calculus to a first grader. Josh simply is not capable of understanding about Canada and Mexico, yet.(if ever)
These are just some of our experiences. The 1p36 community needs your help. All you have to do is vote. Thank you so much.
We have struggled Josh's entire life to find the proper help for him. We have lived in 4 different states. Every move has been for Josh. Recently Josh and I moved to North Carolina. Once we got here I quickly discovered that the resources that were here during my search were no longer available due to budget cuts. Josh has been denied to programs based on his disability. The doctors, therapists, and teachers don't know what 1p36 deletion syndrome is, so they don't know what to do for him. My suggestion is to educate yourself so when these children come into your programs you can help them.
I will say it has not all been bad. We lived in South Florida, and Pediatric Therapy Associates in Plantation, FL was an extraordinary therapy center. They went above and beyond the call of duty. Josh also attended a non profit school in Coral Springs, FL called Abi's Place. We were fortunate that year to receive a full scholarship for him. While attending Abi's Place I saw so many wonderful changes in Josh. The staff at the school made the parents feel like family. It was a great experience. You may wonder why we moved? Well, I simply couldn't afford to live in South Florida. As a single mom I didn't know how I would pay the bills. Josh lost his scholarship due to lack of funding. I chose NC because I believed that everything we needed was here, and the cost of living is lower here.
Joshua has seen 6 different physical therapists here. One therapist dropped him on his head. He had to get a CAT scan. One decided to wrap a rope around his torso, and pulled him off the ground with the rope causing injury. And 3 simply did not want to work with him. He is starting with the 6th therapist tomorrow. I am praying that she will work out. His school has segregated their special needs students. While at the open house I discovered that they were teaching my son at the same level as his 8 and 9 year old peers. This is like teaching calculus to a first grader. Josh simply is not capable of understanding about Canada and Mexico, yet.(if ever)
These are just some of our experiences. The 1p36 community needs your help. All you have to do is vote. Thank you so much.
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